As Parliament convenes the Symposium on Children’s Rights Legislative Reform this week, discussions will rightly centre on child protection, education, welfare, and access to healthcare. However, one critical issue often remains overlooked: are we generating the evidence needed to effectively uphold and advance these rights?

Hear from Dr Teguh Haryo Sasongko, a rare disease researcher based at IMU University, as he shares his perspective on this issue at A Question For Malaysia’s Children’s Rights Reform: Rare Diseases, Forgotten Children, And The Right To Research — Teguh Haryo Sasongko (Code Blue, 10 June 2026).